This Woman Has a Rare Disease And You Won't Believe Her Heartfelt Story

Ray Porter September 30th 2017 Inspiration
We've all fantasized, men included, about being able to eat whatever we want, whenever we want and not put on weight but the reality of this fantasy is truly a dark struggle. Lizzie Valasquez has a rare disease preventing her from ever putting on weight, no matter what she eats. Her condition has left her unnaturally skinny and disfigured. Her story will pull at your heartstrings and her attitude will warm your heart and motivate you.
Introducing Lizzie Valasquez
Lizzie in a motivational speaker, author, and youtuber with a rare congenital disease called Marfanoid-progeroid-lipodystrophy syndrome that among other things prevents her from gaining body fat or weight. At the time of her TedX Austin talk in late 2013, she was one of only 3 known cases of this condition in the world.
Lizzies's Obstacles in life
Lizzie is 28 years old this year and has never weighed more than 64 pounds in her entire life. Due to her physical disfigurement and obvious differences from other 'normal' children she has suffered from bullying throughout her entire life.
The Trauma of Bullying
Despite all the medical difficulties Lizzie has suffered in her life she stills calls bullying one of the biggest things she's had to deal with growing up. Bullying is a huge burden on all our children and the fact that it affected someone that had to deal with other great challenges so much proves the magnitude of this problem.
The "World's Ugliest Person" - a fighter
In 2006 Lizzie was labelled the "World's Ugliest Person", when she was just seventeen. Ever since then Lizzie has spoken out against bullying, her youtube videos receiving over 54 million views. Lizzie is known to be an optimist and her fighting spirit is on show in her motivational speaking.
Lizzie Valasquez - An Author Too
Lizzie has written two books directed at teenagers too. These books share stories and offer advice. 'Be Beautiful, Be You' shares her journey "to discover what truly makes us beautiful, and teaches readers to recognize their unique gifts and blessings" and is also published in Spanish.
'Choosing Happiness'
Her second book is called 'Choosing Happiness' and explores the power the choices of individuals and their attitudes have on their lives. It talks about the obstacles she has faced in her life and how she "learned the importance of choosing to be happy when it's all too easy to give up".
More than Just her Weight
The syndrome affects more than just Lizzie's weight and body fat; she is additionally blind in her right eye after it started clouding over at age four and vision impaired in her left eye. And she still retains a determinedly positive attitude.
A Tough Life from Birth, but Blessed
While Lizzie was in her mother's womb the doctors informed her that there was no abiotic fluid around her baby. Due to this, it was a miracle that Lizzie was born alive. The doctors told her parents to expect Lizzie to "never be able to talk, crawl, walk, think, or do anything by herself". Lizzie's parents responded to this by loving their child.
The Miracle of Loving Parents
Lizzie was her parents' first child and it would have been all too easy for them to despair and start asking questions like "why me?", but that is not what they did. The first things her parents said to the doctors was they wanted to see their baby and take her home and love her.
Raised 150% Normal
Lizzie's Parents committed to raising their baby girl to the best of their abilities, at an early age this meant completely normally. Lizzie credits everything she has accomplished in her life to her parents and particularly the strength in the face of challenges to her mother.
The Shock of Other Children
Prior to school Lizzie was raised very normally. So when she started kindergarten, fully decked out as Pocahontas, she finally learnt that she was not like the other kinds. For a time she didn't understand what was wrong until she finally asked her parents and they explained the implications of her syndrome.
Looking at the Bright Side
Lizzie has an inspirational ability to see the bright side on some very tough stuff. In her TedX talk, she in a humorous manner outlines the advantages to the symptoms of her syndrome. Obviously free to eat whatever she wants to.
Advantage to Partial Blindness?
She goes further, stating that the benefits of her vision impairments mean she only must buy one contact therefore only paying half price. Similarly, she only must pay for one prescription lense for glasses. She adds that if someone is being rude or annoying if she moves so they are one her right side she cannot see them as if they are not there.
An Inspiration to All
Lizzie is inspirational woman. She has been through so much in her life and maintained a positive outlook and achieved a successful and happy life. But more than this she is a fighter and she fights for others, helping in her manner, to make the world a better place.
She's Still Going
Lizzie Continues to live her life fighting through her syndrome and staying positive. She gives talks around the country to help others and fight the problem of bullying. Additionally, her two books and youtube videos are helping people every day


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